Tag: Monetary penalty notice

Charity Receives £18,000 GDPR Fine

On Monday, a Scottish Charity (Birthlink) received a GDPR Monetary Penalty Notice of £18,000 after it destroyed approximately 4,800 personal records, up to ten percent of which may be irreplaceable. 

Birthlink is a charity specialising in post-adoption support and advice, for people who have been affected by adoption with a Scottish connection.
Since 1984 it has owned and maintained the Adoption Contact Register for Scotland. The Register allows adopted people, birth parents, birth relatives and relatives of an adopted person to register their details with the aim of being linked to and potentially reunited with family members. 

Key findings from the Information Commissioner’s Office (ICO) investigation include: 

  • Handwritten letters and photographs from birth parents amongst items destroyed 
  • Some people’s access to part of their family histories and identities may have been permanently erased due to systematic data protection failures 
  • Poor records management means true extent of actual loss will never fully be known 
  • The charity had limited knowledge of data protection obligations and lacked cost effective and easy-to-implement policies and procedures, which would likely have prevented the destruction. 

Background 

In January 2021, Birthlink reviewed whether they could destroy ‘Linked Records’ as space was running out in the charity’s filing cabinets. ‘Linked Records’ are files of cases where people had already been linked with the person they sought and can include handwritten letters from birth parents, photographs, and copies of birth certificates.  

Following a February 2021 Board meeting, it was agreed no barriers to the destruction of records existed but that retention periods should apply to certain files and only replaceable records could be destroyed. Due to poor record keeping, it is estimated some records were destroyed on 15 April 2021 with a further 40 bags destroyed on 27 May 2021.  

In August 2023, following an inspection by the Care Inspectorate, the Birthlink Board became aware that irreplaceable items had in fact been destroyed as part of the overall record destruction. It reported the incident to the ICO. 

ICO Findings 

The ICO investigation found the following infringements of the UK GDPR: 

  1. Birthlink’s destruction of manual records containing personal data of approximately 4,800 of its service users without authorisation or lawful basis (“Relevant Processing”) occurred as a result of its failure to implement appropriate organisational measures ensuring the security of the personal data contained in the records. In this regard, the ICO found that Birthlink contravened Articles 5(1)(f) and 32(1)-(2) of the UK GDPR (security). 
  1. A significant contributing factor leading to the Relevant Processing, was Birthlink’s failure to demonstrate compliance with the data protection principles in accordance with Article 5(2) of the UK GDPR. Birthlink has accepted that there was limited understanding of the UK GDPR at the time of the Relevant Processing until around March 2023 when it introduced data protection training for its staff. 
  1. Despite acknowledging the high risk to affected service users arising from the Relevant Processing, Birthlink did not notify the ICO of the personal data breach until 8 September 2023. A delay of two years and five months represents a marked departure from the obligation to notify the ICO within 72 hours of becoming aware of a personal data breach in accordance with Article 33(1) UK GDPR. 

Why a fine now? 

This fine comes two weeks after the catastrophic data breach involving the Ministry of Defence (MoD) was reported, following the High Court lifting a superinjunction. In February 2022, an MoD official mistakenly emailed a spreadsheet containing personal details of over 18,000 Afghan nationals who had applied to move to the UK under the Afghan Relocations and Assistance Policy (ARAP). The data breach also contained personal details of more than 100 British officials including those whose identities are most closely guarded; special forces and spies.  

Despite the scale and sensitivity of the MoD data breach, the ICO decided not to take any regulatory action; not even a reprimand! In its press release, the ICO praised the MoD’s internal investigation and mitigation efforts, stating that “no further regulatory action is required at this time”.  

The ICO has been heavily criticised for their inaction. The Commons Defence Committee said it would launch its own inquiry, and Dame Chi Onwurah, chair of the Commons Committee for Science Innovation and Technology, said that it is writing to the Information Commissioner pushing for an investigation. Following this, the Information Commissioner issued a further statement explaining the ICO approach.  

Of course no one is suggesting that the ICO fine for Birthlink is an attempt by the ICO to move on from the MoD non-enforcement but readers may at least be wondering why a relatively small Scottish charity is fined whilst a large government department (which has been fined previously in similar circumstances) has faced no action at all.  

This case shows the importance of good records management in ensuring GDPR compliance. Our forthcoming workshop will help you implement records management best practice and understand how it can help manage the personal data lifecycle. 

£2.31 Million GDPR Fine for Genetic Testing Company. But will the fine be paid? 

The Information Commissioner’s Office (ICO) has fined a US genetic testing company £2.31 million under the UK GDPR following a 2023 cyber-attack. 

23andMe provides genetic testing for, amongst other things, health purposes and ancestry tracing. In 2023 a hacker carried out a credential stuffing attack on the company’s platform, exploiting reused login credentials that were stolen from previous unrelated data breaches. This resulted in unauthorised access to 155,592 UK residents’ personal data; potentially revealing sensitive data such as profile images, race, ethnicity, family trees and health reports. The type and amount of personal data accessed varied depending on the information included in a customer’s account. 

The investigation into 23andMe revealed serious security failings at the time of the 2023 data breach. The company failed to implement appropriate authentication and verification measures, such as mandatory multi-factor authentication, secure password protocols, or unpredictable usernames. It also failed to implement appropriate controls over access to raw genetic data and did not have effective systems in place to monitor, detect, or respond to cyber threats targeting its customers’ sensitive information. 

The ICO also found that 23andMe’s response to the unfolding incident was inadequate. The hacker began their credential stuffing attack in April 2023, before carrying out their first period of intense credential stuffing activity in May 2023.
In August 2023, a claim of data theft affecting over 10 million users was dismissed as a hoax, despite 23andMe having conducted isolated investigations into unauthorised activity on its platform in July 2023. Another wave of credential stuffing followed in September 2023, but the company did not start a full investigation until October 2023, when a 23andMe employee discovered that the stolen data had been advertised for sale on Reddit. Only then did 23andMe confirm that a breach had occurred.  

What happens now? 

The ICO has made much of this penalty and the joint investigation conducted with the Office of the Privacy Commissioner of Canada. John Edwards, the Information Commissioner, said: 

“We carried out this investigation in collaboration with our Canadian counterparts, and it highlights the power of international cooperation in holding global companies to account. Data protection doesn’t stop at borders, and neither do we when it comes to protecting the rights of UK residents.” 

The fine comes after an ICO statement in March which said that a Notice of Intent had been issued of £4.59 million. An almost 50% reduction but, whatever the amount of the fine, the ICO is unlike to see a penny.  

In April 23andMe filed for bankruptcy in the US courts. On Friday it said that it had agreed to the sale of its assets to a non-profit biotech organisation led by its
co-founder and former chief executive. It said the purchase of the company would come with binding commitments to uphold existing policies and consumer protections, such as letting customers delete their accounts, genetic data and opt out of research.
A bankruptcy court is scheduled to hear the case for its approval on Wednesday. 

This case is also a good example of  the extra territorial reach of the UK GDPR.  Article 3(2)(a) UK GDPR as although 23andMe is not established within the UK, it processes the personal data of the affected UK Data Subjects for the purposes of offering goods or services to those individuals. 

This is the third fine issued by the ICO in 2025. In April a £60,000 fine was issued to a law firm and in March an NHS IT supplier was fined £3million. Both also followed cyber-attacks.   

 We have two workshops coming up (How to Increase Cyber Security in your Organisation and Cyber Security for DPOs) which are ideal for organisations who wish to up skill their employees about cyber security. See also our Managing Personal Data Breaches Workshop.